Family management of care for children with chronic conditions in the context of the COVID-19 pandemic - Revista Brasileira de Enfermagem

ABSTRACT

Objectives:

to understand the experience of family management in caring for children with chronic conditions in the context of the COVID-19 pandemic.

Methods:

a qualitative study, based on the Family Management Style Framework, carried out with 24 families of children with chronic conditions. Data were collected through semi-structured interviews and subjected to thematic analysis.

Results:

before the pandemic, families followed their routines, adapting to care demands. With the pandemic, new challenges in family dynamics were imposed, influencing management behaviors. Coping and resilience were crucial to maintaining focus on the well-being of their children in the context of crisis.

Final Considerations:

knowledge about family management of care for children with chronic conditions in the context of the pandemic allowed us to recognize families’ efforts to provide care in adverse situations. New skills and competencies were acquired, but there was an impact on continuity of care.